Little Lydia turns one!

Today my little girl turns one!! We love our sweet Lydia bug! We had a combined party for Lydia and Lindsay and it turned out so cute!! At one years little is so close to crawling! She rocks back and forth and trys to jump on her knees...she can't quite get her hands to move yet...but hopefully soon! I had a dr appt but they cancelled it till next week then i can do Lydias stats. She loves loves loves her daddy and big brother and they can't get her to laugh like crazy! Where ever Cameron is in a room she has to see him and is always looking for him! We are greatful for her and her journey so far and are glad she came into our lives a year ago today! Happy Birthday Lydia!

Party favor jars....Lydias said...time flies when your having fun, can you believe it im one!

Lindsays said, Today is my birthday, its oh so great, I am now a young 28! ( i know I should be a poet!!)

Lydia with her cute ceramic cupcake Grandma Sylvia and Papa Chuck gave her!

The cupcake icecream cones!

THe yummy lemon cupcakes mom and Britt made and the giant cupcake cake!

I don't want it, its yucky! Thats about right!

Cute birthday girls!

Look at the haul Ammy gave her! Shes so spoiled!!

Loves from Grandma Sylvia! Love the tutu dress Aunt Brittany gave her

Happy 1st Birthday Lyddie Bug!!

Easter 2012

We had a fun Easter this year! Saturday Britts and Moms neighborhood had a brunch and Easter egg hunt then I mad sugar cookies and all the kids decorated them! Sunday we woke up Cameron had fun finding eggs...his favorite were the ones with money in them. He kept telling up he wanted to go buy a toy! Then we went to church then out to moms for more egg finding and a wonderful Easter dinner with lots of the family! Happy Easter!

The fun Easter basket cake I made!

So cute!

Camerons ready for the beach!!

It was a fun year!

Random!

Lydia thinking about crawlingLove her big hair!!

This is what happens when your 3 year old leaves a opened marker on the ground for his little sister to find!

Whoops!! It was washable so it came right off!

The many sleeping places of Lydia

Sleepingabout to fall out of her chair sleeping

Looking stylish while sleeping!

This little girl can fall asleep wherever and whenever!! She looks so cute while shes doing it though!

My little Cat baby!

10 months

9 months

8months

7 months

6 months5 months

4 months3 months

2 months

1 monthA couple of days oldMy Little tiny cat baby is almost 11 months old and I was looking back and realized I just don't blog enough about her! Shes tiny but man is she a handful! In case its not rememberd she was born at 3lbs and 12 oz, I am happy to say at almost 11 months old she is up to 14lbs 3oz! Its taken alot to get there! She just recently in january had a feeding tube put into her tummy and in the last month its the most weight shes gained ever since shes been born!

Ill start at the begining....

When I was 18 weeks they told me there was something "wrong" with my baby and that they didn't know if she was going to make it. After weeks of worrying if she was going to make it and worrying if she did make it would she have lots of problems in her life? I had dozens of ultra sounds and heart and brain scans, I think I was on first name bases with everyone in the ob and special prenatal office! When I was right at 36 weeks I went in for an ultra sound the Dr told me she hadn't gained any weight in 3 weeks and that she needed to come out. So my office called me and told me the hospital was waiting for me. So I had to call my work...they werent very happy! I had to call Ryan, it was his firs day at a new job! They induced me and almost 24 hours later she was here...but not after having to be put on oxygen and being threathened with a c-section since she kept being in distress. Mom commented to me right before she was born that my delieverys stress her out! Sorry Mom! She was born...after one push...she was 3 lbs! They took her away bc her coloring wasn't good. They nursery people worked on her and they said i could hold her for a minute but then they had to take her. I made a comment how funny she sounds like a little kitty cat. She was in the hospital for 4 weeks for low birth weight, low oxygen and the fact that she had a hard time eating. After shed been there 3 weeks they said they could'nt find any reason she was so small and having a hard time growing, they asked if they could do a blood test to test her chromosomes. After a few weeks they told us that she had a problem with her number 5 chromosome...a few days later they told us she had a rare genetic syndrome called Cri du Chat...its french for Cats Cry Syndrome. (she definetly sounded like one) So unknown to Ryan and I my favorite nursery nurse kept insisiting to the Dr. that she had it where everyone else didn't think so, she kept pushing it until they had her tested. Its rare...1 in 50,000 births. We read up on it, it sounded very overwelming, but at least we had an answer to the question. Ryan and I were tested and neither of us are carriers so it was just a rare thing that happened. She can be a lot of work for coming in such a small package! Shes has the club feet, which are getting so much better that she only has to wear her braces at night! We have 3 therapists that come to our house every week. We have a feeding therapist that helps with her sucking, swallowing issues, a Developmental specialist, and a physical therapist to help her. Shes behind physically and developmentally from where she should be. Shes 11 months and still can't crawl or sit up..shes getting so close though! She can get up and rock on her hands and knees..so were hoping any day now! The genetics Dr. we see says it totally normal for her syndrome. The main thing this syndrome can affect is her larynx...thus the cat cry. Some children never talk at all, some can say a few sounds and words, she still so young we don't know about that part yet. Some days I look at other babys who are her same age and I think, If Lydia was "normal" she would be doing that, she could be standing maybe even taking a few steps or saying mom. But then I remember what a sweet little Lydie Bug I have and know that Heavenly Father gave her to me and Ryan and Cameron for a reason. Cameron loves her so much and is such a good helper with all her therapys and feeding time. I love that hes her older brother, hes going to take such good care of her. Oh Ryan...I know Lydia has a special place in her heart for her daddy....he loves her so much. She lights up when he comes home from work...she has to look for him all the time to make sure hes still there! When he leaves a room, she crys. Hes so good with her. When she was in the hospital for 6 days getting the feeding tube in he didn't leave her side, not once. He said shes to little and if we don't look out for her, whos going to? I know some days shes frustrating and keeps me up and night but what we have done if the Drs were right and she hadn't made it past 18 weeks. The other day we were shopping and Cameron says mom, can I have a brother?! I said do you want to trade Lydia for a brother and he looks and her and me and says, no I love little Lydia...that about sums up how we all feel about our sweet spiritited Little Cat baby!

I guess good things do really come in small packages!

Lydia 9 months

Our little Lydia is 9months..shes actually closer to 10 months now but she was in the hospital at 9 months and I was going to have her picture taken but everything go pushed back! So hopefully by 12 months i'll get my act together! Lydia weighs 13lbs 4oz and is 25.25" long. She is still not on the charts for her weight. She is our tiny little peanut.
Nicknames we have for her our....Little Lyida, Little Liddie, peanut, Lydiebug, Stinky, kittycat, Ydia (thats what Cameron calls her because he has problems with his Ls!)
She makes the mmm sound and everytime she does I try to tell Ryan shes trying to say mom! She loves her big brother...with a passion! Where ever he is in the room shes always looking for him. She laughs when he gives her kisses and she tries to immitate him! He makes this spitting noise with his tongue all the time and shes been trying to copy him! So cute!!
Since she was born shes had trouble eating and swallowing and aspirating her bottles into her lungs. Until she was 9months we could just thinken the bottles with rice cereal but she got worse and was aspirating that so they tied to do a feeding tube down her nose, but she chocked on it to bad, after 4 trys and some crying from me and Lydia! They decided they would have to do the g-tube in her tummy. Shes taken to very well and she still hasn't gained a ton of weight but its only been a few weeks so hopefully shell get bigger, she needs it!
She still can't sit up all the way, but we have a physical therapist working with her so hopefully by the time shes 1! She can get up on her knees and rocks but still now crawling, but the rate shes going she might do that first!!
We love our Little Lydiebug and although shes quite the handful we are greatful for her so much!

Disneyland Febuary 2012

We went to Disneyland in December 2011 and bought a annual pass and of course I blogged about it but then something happened to it and it erased so we went again in Febuary and I decided i should really blog about It since I was a slacker abour redoing December! We had alot of fun...Cameron loves Disneyland the second and third day we were there we just let him pick everything we did because the first day we pretty much did everything because there were no crowds! Thats always the best!! Lydia did really well too and Cameron was so good!! We played and ate great food and enjoyed spending the time together!! Here is a pick of Cameron on the slide...sorry kindof blurry!

Lydia passed out on Heimlichs trainCameron had a lot of fun with the characters this time! Handy Manny!! Cameron tried to walk away after this picture was taken and Handy Manny grabbed his monkey tail and was teasing him with it! He wouldn't let go till Cameron gave him a hug and I got a picture of it but it was too blurry!!!

Everytime we walked by Frontierland Cameron wanted to shoot the guns!

Cute!! With Chip and Dale!

PEEK A BOO!

These next ones with pluto are my favorite! Cameron had so much fun!!

Cute!

HUGS!

Yay for pluto!

Lydia just chilling!

The teacups with me

Lydia eating...she did really well with the feeding tube...and didn't really fuss at all!! Guess she was meant to be part of our family because she loves Disneyland too!The end of the third day Cameron pretty much passed out and he was in the weirdest postition so we had to take a picture!! He slept like this the whole way back to the hotel! Guess we wore him out!!